Disability, Endo Violence, and Inclusive Digital Care
This project explores how people from minoritized groups within the endometriosis community – particularly those with visual, auditory, and mobility impairments – experience barriers to participation and visibility in online spaces. Building on previous research on endo violence temporalities, which explored the relationship between endo violence and digital inequalities over time, this project examines these dynamics in greater depth by centering the forms of endo violence faced by disabled people.
While social media platforms such as Instagram have become vital sources of health information and peer support, dominant forms of representation privilege certain bodies and experiences. These dynamics are shaped by ableist norms embedded in digital platforms and health discourses, which can limit equity, participation, and well-being. Using participatory and community-led methods, the project will host a two-part online workshop bringing together endometriosis content creators, activists, and researchers in a supportive space. Across two days, the workshop will bring together expert perspectives on digital inequalities and practitioner-led insights from disabled activists, alongside collaborative reflection and knowledge-sharing, resulting in a co-created public report that summarizes shared learning and offers community-informed suggestions for improving inclusion, accessibility, and representation in digital endometriosis spaces.
The aims of the project are to:
- Examine how endo violence temporalities and ableist norms shape accessibility, participation, and visibility in digital endometriosis spaces.
- Support minoritized endometriosis content creators with disabilities through peer connection, recognition, and sustainable digital practices.
- Co-develop community-informed strategies for more inclusive and accessible endometriosis-related content.The project’s impact lies in both its process and outcomes.
In the short term, it creates space for mutual support, strengthens well-being, and acknowledges invisible labor in health advocacy. In the longer term, it will produce a co-authored report sharing insights and practical approaches to advancing equity and accessibility in digital health spaces.The project team brings experience in health research, disability-informed approaches, crip theory, and accessible digital publishing. Through fair pay, inclusive design, and shared decision-making, the project aligns with INCLUDE+’s commitment to equity, well-being, civic culture, and inclusive digital futures.
Team
Dr. Alekszandra Rokvity – Project Lead, University of Graz